Posted June 22, 2012 01:37 AM
I have had about 12 surgeries.. partial colectomy, total, j Pouch, fistula and sphincter repair, temp ileo, BCIR with J pouch removal, BCIR removal (due to fistula and multiple infections), fustula repair....
I had my latest surgery last year to try remove the last few feet of intestine, and fistulae and create a new iloe.... failed due to a frozen abdomen. My surgeon could not tell intestine from scar tissue and adhensions; managed to remove one fistula, tried to remove the other, but could not. He says that I WILL NOT have any more surgeries due to a frozen abdomen. Now, nearly a year later, after trying TPN and "plugging" the fistula, all failed. I still have 2 ostomy bags, intestinal bacteria overgrowth and low iron, I want to try again. My file has been sent to the Cleveland CLinic where Dr Dietz has suggested a Koch Pouch...? Dont think that is really an option. He is willing to create a new ileostomy. He doesn't think that the "frozen abdomen", due to numerous surgeries and scar tissue, is a problem. I am delighted with his optimism, but concerned he is not being realistic. I do not want to end up worse than I am now. I heard he was conservative and worried that he has not reviewed my file fully.
I am wondering if anyone else has had complications in the past and if he was successful in treating them? I had my BCIR done in FL with Dr Rhenke and he said he will try also.
Thank you for any information you can give me.