Hey there! I need some help/advice and to see if anyone else has had this same problem. I’m almost 4 most post takedown surgery and doing pretty well! Jpouch is working well and I’m feeling good with that, BUT, ever since my first surgery in June 2019, I’ve had chronic issues with my bladder. I get nerve pain that lasts a few days and that comes on suddenly and then completely goes away for a few weeks until it comes back again. Also, I’ve been getting frequent UTIs. Never had this problem before my jpouch surgeries! I just finished ATB for a uti about 2 weeks ago and now I have another uti. I do not leak any stool and have excellent hygiene...I just don’t understand what is going on? The UTIs come on suddenly but I’ve also had them come on the day after sex. I’ve been to urology and they were no help. I definitely feel like between the UTIs and nerve pain, something has happened to my bladder after surgery. I don’t know what to do? Any ideas?

 

thanks!

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Scott F posted:

You might need to see a better urologist.

Lol that’s for sure! I forgot to mention, I do have an appt scheduled with a urogynecologist- but won’t be seen for another 1.5 months. Just trying to collect an info/advice I can until I get my appt. thanks for your reply!

Start with a run of probiotics, good quality taken in the mornings before eating or drinking anything else.

Next, change soap. NO washing down there with normal shampoos, soaps or body wash...only detergent-free special PH balanced soap. 

Only cotton unddies, no baths and use a bidet if needed. 

I had constant UTIs until I changed Obs-gyn who gave me these rules...next UTI was about 10ys later.

Yes, you may need to check with a nephrologist or a different urologist but these a baseline precautionary measures.

Sharon

skn69 posted:

Start with a run of probiotics, good quality taken in the mornings before eating or drinking anything else.

Next, change soap. NO washing down there with normal shampoos, soaps or body wash...only detergent-free special PH balanced soap. 

Only cotton unddies, no baths and use a bidet if needed. 

I had constant UTIs until I changed Obs-gyn who gave me these rules...next UTI was about 10ys later.

Yes, you may need to check with a nephrologist or a different urologist but these a baseline precautionary measures.

Sharon

Thanks so much, I’ll start implementing these things!

 

Did you have ulcerative colitis? It is very common for those with that to also have interstitial cystitis which can mimic bladder infections. You should see urologist and have your bladder scoped to find out. There are things to help if this is the actual issue. 

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