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Hi Guys! 
I’ve had my J-pouch for 2 years. Since my first surgery, I’ve suffered from sacral/buttock pain. It’s dull and achy and gets worse through the day, I sleep on a heating pad at night to help me fall asleep. Some nights it’s considerably troublesome and hard to fall asleep. Most mornings it seems to be unnoticeable and slowly through the evenings increases. I have since surgery been diagnosed with an anal fissure, and an anal fistula which I’ve had surgery on. As well as Crohns and am now currently on Humira. Just wondered if anyone suffers from this? 

Also, I’ve had MRIs and CTs both showing nothing abnormal. My GI thought it could be nerve related from surgery and prescribed Gabapentin, which seems to have no effect. 

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@Krystal posted:

Hi Guys! 
I’ve had my J-pouch for 2 years. Since my first surgery, I’ve suffered from sacral/buttock pain. It’s dull and achy and gets worse through the day, I sleep on a heating pad at night to help me fall asleep. Some nights it’s considerably troublesome and hard to fall asleep. Most mornings it seems to be unnoticeable and slowly through the evenings increases. I have since surgery been diagnosed with an anal fissure, and an anal fistula which I’ve had surgery on. As well as Crohns and am now currently on Humira. Just wondered if anyone suffers from this? 

Also, I’ve had MRIs and CTs both showing nothing abnormal. My GI thought it could be nerve related from surgery and prescribed Gabapentin, which seems to have no effect. 

I had my redo 5 years ago, and I have this very sore area about a fingertip inside my anus for the past few years. We did an MRI 2 years ago to rule out abcess and fistula and it ruled them out. Scope did not show any issues either. It will come and go weeks at a time but when bad it really hurts. Odd thing is when I get the pain in my anus I get a burning sharp pain in front of my shin and on top of my foot and nothing in between.. Pain management doc says it definitely nerve related. He also has me on gabapentin as well and just keeps upping my dose with zero relief. I am on 800mg 3 times a day for about a month now. He stated give it two months and if no resolution he wants to get an MRI of my lower back to see if he sees anything. I already know I have degenerative issues of L4-L5 which prompted my first visit to pain management for lower back pain. I did go to PT for awhile and it definatlely helped the back issue, but I don't keep up on it daily so it has come back

Even if it doesn't show it could still be an abscess brewing...Does heat help? Could it be something that a chiro could try to adjust? Not making light of it but all of the surgeries, illness etc sometimes we neglect to consider the simple stuff, like maybe we could use an adjustment? 

I slipped and fell 4yrs ago doing a flying splits (not as poetic as it sounds) and landed hard. Nothing broke so I got ignored but my sacral pain just kept getting worse til I could barely walk. X-rays showed nothing. They just kept upping the pain meds (I had a veritable pharmacy in my house because I refused to take them...I couldn't work on Tramadol and codeine killed my output)... I was at whit's end. Nearly suicidal...the pressure and pain just kept getting worse. Work was unbearable. 

One day I met an Ethiopathe (sort of a cross between a chiro and an osteopath)...the first adjustment sounded like a car crash. Even he was scared. But the pain and pressure just went 'poof' and disappeared. I had a blocked nerve and he managed to unblock it...2 yrs of hell for nothing. 

When traditional medicine does not find answers for me, especially concerning pain, I go elsewhere. But always make sure that I have a licensed and respectable specialist and not a quack. 

Sharon

 

I have been experiencing pain in my sacral area for almost a year.  It feels like my tail bone is broken and it really hurt when getting up from a seated position.  I did not know that a person could get arthritis in the sacral joints and the pain can be relieved with certain types of stretching exercises.  Unfortunately it turn out to be an abscess which burst causing peritonitis and sepsis.  Blood work showed an elevated white blood cell count of 21k.  I would monitor that closely. Hope this helps

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