Since getting my J-pouch 7 years ago have constantly battled pouchitis; which I was recently told was very common with PSC patients. Was having hallucination/Deja Vu type issues while on Flagyl. Go off...they stopped. Back on...they'd happen again. In Dec. they found I have a meningioma. Radiation/Cyberknife done. I believe there is a definite correlation between the Flagyl use and this brain tumor. Anyone else experienced anything like this? Sadly Flagyl is the only drug that worked on my pouchitis.
Anyone else reverse the J-pouch and been happier for doing so? Just beyond tired of this unwinnable battle.