My son had j-pouch placement after years of suffering with ulcerative colitis.  He is 40 years old.  I would like to hear if any other individuals out there suffer with chronic iron difficiency anemia post surgery and how it was investigated.  His surgery was eight years ago. Thanks

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I suffer from chronic anemia and now have iron infusions every year, or more if my levels drop. I also take Vitamin B shots every month. I now  have blood work done every 3 months to check levels, so it never gets very low. The infusions are done every week for 4-6 weeks, depending on how low the level is. It is an easy fix now that we know what is happening. Also, I tried iron tablets and they didn't make any difference, so that was a waste of 2 months!

I've had this problem for over a year now. It was found by my family doctor through routine blood test. It doesn't really cause fatigue, and I kind of quit taking my iron pills unless I have a pouchitis flare. Then I really notice some tiredness, whether from the pouch or the lack of iron.

I also have iron deficiency. It was found one year post surgery 12 years ago--symptoms were extreme tiredness and white lips! A blood test soon revealed anemia.At that time I had to get transfusions. (Just once)

I am now getting ferraheme IV infusions, which work very well. I have gone from getting them twice a year to once a year. I started taking forvia chewable vitamins 3 years ago, and I think it has made a difference. The vitamins are made for people with absorption problems. Thanks to this j-pouch site for mentioning the vitamins! The website for the vitamins is

Iron tablets were not being absorbed and also caused severe cramps.

My son had anemia, and it has taken years to start to sort out.  And yes, he was far under weight due to improper absorption.  Blood tests and iron pills have slowly helped.  After 4 1/2 years, he is down to a multivitamin with iron each day, and his levels finally made it into the normal ranges.  As did his weight, even tho he is still thin.

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