When do you say enough is enough??? It has been 20 months since takedown and the butt burn is just as severe as it was initially. It is definitely diet related, but unfortunately it is almost everything that I eat. All fruits except bananas, anything citrus, tomato based, chocolate, any seasoning except salt, coffee... is incredibly painful. I am frustrated, underweight and trying to live a “normal” life. Ha! I have been having 7-10 stools a day which is normal and always have had some incontinence. I have tried lidocaine, all creams humanly possible, but eating any “no” food in even it’s smallest portion is recipe for a miserable 24 hrs. Any advice?
Assuming you’re using the barrier cream correctly (*after* each BM) then it’s way past time to try some other things. The easiest thing to try is tinkering with the pH, using something like Zantac, Prilosec, or even Tums. You’ll know pretty soon if it helps. Another thing worth trying is cholestyramine resin, but that needs a prescription. Has you GI (or surgeon) taken a look? It’s hard to inspect ourselves down there.
I had the same problem among others.
No cream or anything would stop it. Nothing.
It was one of the factors in my removal. Yes. That painful every time I went. Nothing absolutely nothing would stop the feeling of lava coming out everytime. No matter what I ate it was there. I'm not saying you go to the extreme I did. But I will say one thing. I don't miss using that part of my body one bit and I don't regret what I have done. It ruled my life completely. Every day revolved around the bathroom. I was done and am done with that. I have the freedom I want. And no regrets.
Been there. I found mine was the remaining cuff irritation after j-pouch where UC was still present
I went on entyvio and things have improved dramatically. Still have to watch diet but pain is significantly less. Good luck.
I have found nuts to be extremely irritating with butt burn.
Have you been checked for pouchitis? OR a fissure? hemorrhoid?
For me,. it is all related to diet.
I avoid dairy foods, especially anything that has lactate.
I also use calmoseptine. It helps a lot.
After each BM I rinse with water. I discovered this in middle east countries where next to each toilet is a hose for rinsing. Cold water. Afterwards cream
My (once serious) butt burn has eased over the seven or so years. Half year ago I started using toilet paper plugs and that reduced the butt burn to quite little. My transition time is about right. I am on a healthy vegan diet and don't take medication.
I have tried Zantac, nexium and questran. The surgeon looks every time that I go in. He just says that the cuff is raw/irritated and can take 2 yrs to heal and get used to it’s acidic environment. It is definitely diet related. Unfortunately it is anything that has any flavor. I use a bidet at home, wipes at work and calmoseptine. I use nitroglycerin or lidocaine for fissures. It seems the only thing that gives even slight relief is sitting in the hottest water possible. Suggestions are welcome.
I would ask for antibiotic - cipro with flagyl and see how that helps.
If the irritation is at the rectal cuff then it might be cuffitis. UC meds administered locally may be useful - Canasa suppositories or mesalamine enemas.