Hello my fellow Jpouch people... A little history - I fought UC for 15 years before I had to have surgery - suffered through 3 surgeries to finally get my Jpouch. I have now had a Jpouch for 3 years and I still suffer with but burn. The pain is often horrible; this makes me sometimes wonder if I should have stopped at surgery #1 and gone with a Ileostomy bag. I use a bidet to wash off after every BM, pat dry  and use Calmoseptine.  If I am very careful with my diet - avoiding red sauce, anything spicy  - some days it is not so bad; however this is still a daily struggle. Just wondering if I am missing something; anyone else still in the same But Burn boat?

 

Original Post

Hi, jpouchman. 

It could be that the menthol in calmoseptine is not what your skin needs right now. Menthol worked very well for me in the first weeks, cooling and soothing, and creating a barrier against residue, but it became a bit too strong for me. I switched to Zincofax, a bum cream for babies' suffering diaper rash. Baby bums are always wet, covered with pee and poo, and locked against their skin with a thick diaper. Recipe for painful, raw skin. Same as a j poucher. Try Zincofax after every BM. Make sure your skin is 100% dry and clean before applying any cream, otherwise you risk a fungal infection back there. Use a cool hairdryer if you must.

To heal any abrasions hiding inside, or just for some relief from pain and burn, buy a sitz basin and use very warm water, sit in the basin once or twice a day for 10 minutes or until the water cools. You can use the tube that comes with a sitz basin to refil the basin with warm water without getting up from the toilet. The warm water will encourage good blood circulation to that area, and will soothe your burning painful skin. Zincofax is $10 or so at any drugstore's baby section. 

I use sudocrem twice daily and apply it directly with my fingers on the hole. Use low pressure on bidet, dont clean the area with toilet paper just gently put it to dry the area . Also butt burn is a issue when the stool is either too runny or acidic. Try supplementing zinc  and vitamin E if you're not having enough from foods. It increases the healing capacity of skin.

Winterberry posted:

Hi, jpouchman. 

It could be that the menthol in calmoseptine is not what your skin needs right now. Menthol worked very well for me in the first weeks, cooling and soothing, and creating a barrier against residue, but it became a bit too strong for me. I switched to Zincofax, a bum cream for babies' suffering diaper rash. Baby bums are always wet, covered with pee and poo, and locked against their skin with a thick diaper. Recipe for painful, raw skin. Same as a j poucher. Try Zincofax after every BM. Make sure your skin is 100% dry and clean before applying any cream, otherwise you risk a fungal infection back there. Use a cool hairdryer if you must.

To heal any abrasions hiding inside, or just for some relief from pain and burn, buy a sitz basin and use very warm water, sit in the basin once or twice a day for 10 minutes or until the water cools. You can use the tube that comes with a sitz basin to refil the basin with warm water without getting up from the toilet. The warm water will encourage good blood circulation to that area, and will soothe your burning painful skin. Zincofax is $10 or so at any drugstore's baby section. 

Many thanks for the reply, I just ordered a tube of Zincofax. Gonna try sitz bath as well.

Raj posted:

I use sudocrem twice daily and apply it directly with my fingers on the hole. Use low pressure on bidet, dont clean the area with toilet paper just gently put it to dry the area . Also butt burn is a issue when the stool is either too runny or acidic. Try supplementing zinc  and vitamin E if you're not having enough from foods. It increases the healing capacity of skin.

Many thanks, I'm gonna try the vitamin therapy for sure.

Bubba1028 posted:

I’m right there with you! I’m going on two years with j pouch and I can’t seem to find anything that works! I’m curious to see what others’ suggestions are. 

Hang in there, I hate to hear you are suffering as well but good to know I'm not the only one in this boat.

I have butt burn problem since I had my JPouch (5 years now).  I tried a number of creams and ointments, from pharmacy, holistic stores, organic, home made, etc., and nothing, nothing works better for me than Petroleum Jelly.  After I use the bidet, tap my butt with soft tissue paper and put a good amount of Petroleum Jelly.  It works so fast I feel relieve in hours.  Did anyone try it before? 

I have the Toto "Washlet" toilet seat which works like a bidet.  The ointments I've tried include Calmoseptine and Zincofax which are similar  The calamine in the Calmoseptine has a mild numbing effect.  Also various diaper rash creams like Desitin and A+D.  My doctor thought she saw fungus in the rash and prescribed Nystatin & Triamcinolone and Halobetasol Propionate Cream.  I can't say that any helped, especially as I wipe them off with the first poop.

I've been living with a painful butt since my second bout of Ulcerative Colitis in 2004.  Surgery in 2005 didn't help the diaper rash but at it least saved my life.  I'm still here 14 years later.

Toni


 

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