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Hello my fellow Jpouch people... A little history - I fought UC for 15 years before I had to have surgery - suffered through 3 surgeries to finally get my Jpouch. I have now had a Jpouch for 3 years and I still suffer with but burn. The pain is often horrible; this makes me sometimes wonder if I should have stopped at surgery #1 and gone with a Ileostomy bag. I use a bidet to wash off after every BM, pat dry  and use Calmoseptine.  If I am very careful with my diet - avoiding red sauce, anything spicy  - some days it is not so bad; however this is still a daily struggle. Just wondering if I am missing something; anyone else still in the same But Burn boat?

 

Original Post

Hi, jpouchman. 

It could be that the menthol in calmoseptine is not what your skin needs right now. Menthol worked very well for me in the first weeks, cooling and soothing, and creating a barrier against residue, but it became a bit too strong for me. I switched to Zincofax, a bum cream for babies' suffering diaper rash. Baby bums are always wet, covered with pee and poo, and locked against their skin with a thick diaper. Recipe for painful, raw skin. Same as a j poucher. Try Zincofax after every BM. Make sure your skin is 100% dry and clean before applying any cream, otherwise you risk a fungal infection back there. Use a cool hairdryer if you must.

To heal any abrasions hiding inside, or just for some relief from pain and burn, buy a sitz basin and use very warm water, sit in the basin once or twice a day for 10 minutes or until the water cools. You can use the tube that comes with a sitz basin to refil the basin with warm water without getting up from the toilet. The warm water will encourage good blood circulation to that area, and will soothe your burning painful skin. Zincofax is $10 or so at any drugstore's baby section. 

I use sudocrem twice daily and apply it directly with my fingers on the hole. Use low pressure on bidet, dont clean the area with toilet paper just gently put it to dry the area . Also butt burn is a issue when the stool is either too runny or acidic. Try supplementing zinc  and vitamin E if you're not having enough from foods. It increases the healing capacity of skin.

Winterberry posted:

Hi, jpouchman. 

It could be that the menthol in calmoseptine is not what your skin needs right now. Menthol worked very well for me in the first weeks, cooling and soothing, and creating a barrier against residue, but it became a bit too strong for me. I switched to Zincofax, a bum cream for babies' suffering diaper rash. Baby bums are always wet, covered with pee and poo, and locked against their skin with a thick diaper. Recipe for painful, raw skin. Same as a j poucher. Try Zincofax after every BM. Make sure your skin is 100% dry and clean before applying any cream, otherwise you risk a fungal infection back there. Use a cool hairdryer if you must.

To heal any abrasions hiding inside, or just for some relief from pain and burn, buy a sitz basin and use very warm water, sit in the basin once or twice a day for 10 minutes or until the water cools. You can use the tube that comes with a sitz basin to refil the basin with warm water without getting up from the toilet. The warm water will encourage good blood circulation to that area, and will soothe your burning painful skin. Zincofax is $10 or so at any drugstore's baby section. 

Many thanks for the reply, I just ordered a tube of Zincofax. Gonna try sitz bath as well.

Raj posted:

I use sudocrem twice daily and apply it directly with my fingers on the hole. Use low pressure on bidet, dont clean the area with toilet paper just gently put it to dry the area . Also butt burn is a issue when the stool is either too runny or acidic. Try supplementing zinc  and vitamin E if you're not having enough from foods. It increases the healing capacity of skin.

Many thanks, I'm gonna try the vitamin therapy for sure.

I have butt burn problem since I had my JPouch (5 years now).  I tried a number of creams and ointments, from pharmacy, holistic stores, organic, home made, etc., and nothing, nothing works better for me than Petroleum Jelly.  After I use the bidet, tap my butt with soft tissue paper and put a good amount of Petroleum Jelly.  It works so fast I feel relieve in hours.  Did anyone try it before? 

I have the Toto "Washlet" toilet seat which works like a bidet.  The ointments I've tried include Calmoseptine and Zincofax which are similar  The calamine in the Calmoseptine has a mild numbing effect.  Also various diaper rash creams like Desitin and A+D.  My doctor thought she saw fungus in the rash and prescribed Nystatin & Triamcinolone and Halobetasol Propionate Cream.  I can't say that any helped, especially as I wipe them off with the first poop.

I've been living with a painful butt since my second bout of Ulcerative Colitis in 2004.  Surgery in 2005 didn't help the diaper rash but at it least saved my life.  I'm still here 14 years later.

Toni


 

jpouchman123! posted:

Hello my fellow Jpouch people... A little history - I fought UC for 15 years before I had to have surgery - suffered through 3 surgeries to finally get my Jpouch. I have now had a Jpouch for 3 years and I still suffer with but burn. The pain is often horrible; this makes me sometimes wonder if I should have stopped at surgery #1 and gone with a Ileostomy bag. I use a bidet to wash off after every BM, pat dry  and use Calmoseptine.  If I am very careful with my diet - avoiding red sauce, anything spicy  - some days it is not so bad; however this is still a daily struggle. Just wondering if I am missing something; anyone else still in the same But Burn boat?

 

I realise this is an older post, but have you tried taking Metamucil (smooth) right before main meals? I found it provided a cushioning effect, reducing the acidity of BMs and also creating a gel that is less irritating to pass. If you search my posts you will find detailed info on how I used it.

I love this cereal. I put it in yogurt. I try and remember to sprinkle it in soup or for instance, as a topping in a baked potato. I want to make muffins with it after the New Year and bring them to work. https://www.swansonvitamins.co...-oatbran-10-6-oz-pkg  

I buy it at Whole Foods but see one can get it on line.

 

I am experimenting with other foods that help bulk things up... Avacado, pumpkin (from a can.. just heat some up, you can add nutmeg or cinnamon and eat as a side dish!) , sweet potatoes. I'd love to hear from others.

 

I have a very small bathroom that I share with my boyfriend and just can't see where I would even store a sitz bath and it just seems like one more thing to make sure I keep clean (along with my dehumidifier, my essential oil diffuser, etc, etc,) and to me, seems awful time consuming... so I just take tons of showers. Even a quick shower where I wash off my butt area with a mild soap, like an unscented Dr. Bronner's liquid soap or Johnson and Johnson's baby soap... and stand under the hot shower, letting the water go onto my anus area by bending forward and adjusting my butt checks. Then make sure, like everyone says, I dry off carefully. We always have an extra rotating fan in the bedroom and I often stand in front of it, turning it to not rotate and just use it to dry everything off well. My Dr. prescribed me a marvelous creme that is by prescription and is made in a place where where they make compounds and it is the best cream I have found. I only use it when I am cleaned up from a shower.

 

I travel a lot and again, I can't see hauling around a sitz bath and often, I share rooms with people I don't know that well.. so I just keep it simple and take lots of showers. Time consuming, but I would think so is a sitz bath and I just don't see the difference in time or end results.

Hello my fellow Jpouch people... A little history - I fought UC for 15 years before I had to have surgery - suffered through 3 surgeries to finally get my Jpouch. I have now had a Jpouch for 3 years and I still suffer with but burn. The pain is often horrible; this makes me sometimes wonder if I should have stopped at surgery #1 and gone with a Ileostomy bag. I use a bidet to wash off after every BM, pat dry  and use Calmoseptine.  If I am very careful with my diet - avoiding red sauce, anything spicy  - some days it is not so bad; however this is still a daily struggle. Just wondering if I am missing something; anyone else still in the same But Burn boat?

 

Hi JPouchman,

I think that this is probably an issue that most of us have struggled with at one point or another and for many it's an ongoing problem. I tried all of the OTC creams for diaper rash and whatever else they suggested to me, but the best one came from my dermatologist (and I just described to him what the issue was - he didn't actually examine my skin) and he gave me Lotrisone cream, a prescription strength medication used to treat fungal skin infections such as athlete's foot, jock itch, and ringworm. And within a week or two, my skin was much better; however, it's always a struggle to keep the area dry, which is so important for healing no matter what you use! Good luck and take care....

I know what you mean, and I wish for me it ended there.  Mine goes up into my rectum.  It feels as if there is an eight piece of red hot angle iron in my anus and rectum constantly.  It is disabling.  It ruins many things, such as sex, because it completely takes my concentration from whatever I am doing.  It also makes it feel as if all Hell is about to break loose all the time.  Do others have this as well?

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