I have over the last few of my 43 years with a K pouch felt burning/pain where my anus used to be . I have thought it may be scar tissue tearing or pulling on the other tissue down there. I, also sit a decent amount at work. Any thoughts,  Thanks 

Original Post

Probably all the above. Had it 20 years ago for 18 months or so, very badly and then it magically went away. Ready for the magic again! Had my pouch almost 44 years now. I often wonder how hard it will be to live with when we get very old?

Hope you are doing well! 

dpol posted:

I have over the last few of my 43 years with a K pouch felt burning/pain where my anus used to be . I have thought it may be scar tissue tearing or pulling on the other tissue down there. I, also sit a decent amount at work. Any thoughts,  Thanks 

I’ve had pain where my rectum use to be for nine years now. It is horrible. It hurts as bad as it would if a steak knife were jammed up my rectal area. It hurts that bad every second of everyday non stop for nine years. I’ve had everything imaginable done to get relief even having a hysterectomy in hopes it would help. I even had a nerves severed in my spine which left my right leg feeling like it’s wrapped to tight in an ace bandage and my foot is numb which make it hard to put on a shoe. My leg feels like when your leg goes to sleep and the feeling is starting to come back but this sensation never goes away. The only thing left is to get a pain pump or have surgery to remove the scar tissue that has my insides all stuck together. When I was twenty I had a ileostomy and wore a bag. Then had three operations trying to get the K-pouch to work and four operations on my behind because it would not heal. It drained and bleed for a year. During this my bowel twisted and had to have some intestines removed. The wound got infected and my abdomen had to be cut open and packed with alcohol soaked gauze several times a day for weeks as it had to heal from inside out. The gauze would stick to the inside so when it was changed it would rip tissue out with it. In 2010 my K-Pouch valve had major fail so had to travel to California to have it replaced with BCIR. It was about a year later the pain in my bottom started. I’m in to much pain to do anything. I never leave my house unless I’m being taken to the doctor. I’m only in my fifties and I’m facing what could be another 25 years like this. So I understand what your going through.

Add Reply

Likes (0)
Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×