Hi, I've had my J-Pouch for 20 years with no problems until this year. I have a branching fistula going in various directions with one opening where the J-Pouch joins the bottom and the only problem it's currently causing is a fistula opening in my left buttock. I know there are lots of different treatments for simple fistulas but not sure about more complex ones, my next appointment isn't for a few weeks to discuss options hence wanting to have any info from those in similar situations. I need surgery to remove an abdominal cyst/pocket if fluid anyway (unsure if this is directly linked to pouch or a separate issue / hydrosalpinx) - not worried about surgery and I didn't find my ileostomy too bad an experience.
curious if a temporary ileostomy is the best way for the fistula to heal or even removal of the pouch. Can setons be temporary and can parts of abdominal fistula or parts of it be removed, i know it mentions opening them up, also can parts of fistula branches simply be showing on MRI but not active.
Thanks in advance for any info.