Anyone have an update to this? Has anyone successfully scheduled with Shen in NY yet? I am a former patient of his at CLE Clinic and hoping to schedule with him soon (luckily I have copies of all of my medical records and tests). Looking for tips and tricks before I call, are they really denying folks on the NYC/Presbyterian end??

 

Strongerlynn posted:

I seen Dr. Philpott she seemed nice. It was who Dr. Shen reccomend. 

please tell us about her, it was who Dr Shen was recommending but nobody knows anything about her.. What has she learned from Dr Shen and can she do anything that Dr Shen did or does she just do pouchoscopies?

Yes that would be helpful. When they called to let me know Shen was leaving, they said his patients were being referred to Brzezinski, Philpott, and Cozzy(not sure of spelling??). But I know nothing about any of them. And have heard other patients were given a different list to choose from??

Ryannsmom posted:

Yes that would be helpful. When they called to let me know Shen was leaving, they said his patients were being referred to Brzezinski, Philpott, and Cozzy(not sure of spelling??). But I know nothing about any of them. And have heard other patients were given a different list to choose from??

my list was:

Brzezinski, Click, Qazi, Sullivan, and Philpott

Quazi is new. I saw him at Boston Med in June. He told me he was going to cle. I think he did residency there, he knew Shen and all about needle knife procedure. He said there was no one like Shen. Don’t know if he knew Shen was leaving at that time. 
he seemed fine. 

Pouchomarx posted:

I am in a huge Jpouch Facebook group and they have all said that's BS, he just cant recruit you to come see him there if you are a CCF patient.. But if you want to schedule an appointment with him in NYC , you sure can do that.

That's correct. Dr Shen is seeing patients in NYC. I found this link (below) on the internet and then called his office. They are scheduling anyone who wants to see him starting next week but his schedules are already filled his secretary mentioned.
 
Phone 212-305-5664
Fax: 212-305-0267
TheoG33 posted:

Anyone have an update to this? Has anyone successfully scheduled with Shen in NY yet? I am a former patient of his at CLE Clinic and hoping to schedule with him soon (luckily I have copies of all of my medical records and tests). Looking for tips and tricks before I call, are they really denying folks on the NYC/Presbyterian end??

 

yes, I called to schedule.

please see his link and contact number/fax I found.

 
Phone 212-305-5664
Fax: 212-305-0267

I have seen Dr. Brzezinski, about 10 years ago for 1 appt and he worked with Dr. SHEN.  I am looking for someone who specializes in fistulas from the pouch,  which is how I found out shen left . He has hopefully left a mark and his peers in the clinic can carry on his teachings..

 

I am in Detroit and work at a hospital and my hospital now requires I stay in their system..  very frustrating when there are better options out there

ChelleH posted:

I have seen Dr. Brzezinski, about 10 years ago for 1 appt and he worked with Dr. SHEN.  I am looking for someone who specializes in fistulas from the pouch,  which is how I found out shen left . He has hopefully left a mark and his peers in the clinic can carry on his teachings..

 

I am in Detroit and work at a hospital and my hospital now requires I stay in their system..  very frustrating when there are better options out there

I don't think anyone there is nearly as good as Shen or can do the things he can do. I just scheduled a new patient appt with Philpott to see what shes about and what her capabilities are. I am on my 2nd pouch and Shen has been with me for 10 years and helped me greatly with my odd issues, I am afraid for my future without him being in my backyard any longer

ChelleH posted:

I don't disagree pouchomarx... 2nd pouch? I didn't know that was an option? I was just trying to be a little positive

Yes I had my original surgery in 2008 and had a lot of issues and almost died from infection. My original surgeon at Cleveland Clinic and Dr Shen tried many procedures and even experimental surgeries to try and correct my issues but over 5 year or so they all failed. I had a total pouch redo with Dr Remzi at Cleveland Clinic just before he left for NYC as well. He is considered the BEST when it comes to pouch issues and redo surgeries. Things are nowhere near perfect for me but much better.

Pouchomarx,  that's amazing! You've been through a lot.  The Cleveland clinic, Dr. Lavery,  also saved my life in 2002. I had toximegacolon and perforation, sepsis,  the works.  Now I have continued pouchitis,  which is how I found Dr. Shen.. but haven't seen him for 6 years due to insurance.  I was on remicade,  that worked for 10 years,  just tried entyvio for 6 months and now have fistulas everywhere .. and chrons of the pouch.  I don't want to lose my pouch.... we are trying humira,  since remicade worked and it's also a TNF blocker..  I am working on appealing my insurance because I know CCF will have more options.. continued luck to you

Strongerlynn posted:

I didn't know if you know or not but Dr. Remzi is very active on Twitter. 

Yes I am aware. I actually still talk with him a few times a month. We have become somewhat friends. When he comes to Cleveland we meet up and supposed to do lunch next time hes in town. He is an awesome surgeon and person

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