just seeking any words of advice or comfort.
Had colitis 10years
had jpouch has surgery 9 years ago by a very very good surgeon.
Had a great result thus far. Lived life to its full. No issues really except A few obstructions, but got over that by amending diet a little bit. No drugs or meds since the day I left hospital 9 years ago
However today for the first time I’m passing blood. Only when I have BM. No other symptoms really. Pouch feels a bit “twitchy” but quite minor.
The only other thing to mention is about a week ago I had 2 nights where I had leaks. Pretty solid ones. And I’ve almost never had leaks. And since then my BMs have seemed a bit off normal pattern. And I thought I noticed a small amount of blood a few days ago, but passed it off as possibly the spag bowl I ate, or the tomato sauce etc. but tonight there’s no way it’s food. It’s blood for sure.
So quick google search makes me think pouchitis or cuffitis. Neither sound overly great and I have a tendency to always jump to the worst conclusion! I’m already worried I’m going to lose my pouch and end up with a permanent stoma! Or back on immunosuppressant drugs for life! Nooooo
I don’t really have anyone to talk to, so asking here.
I’m booked to see my GP in 2 days time. Currently don’t have a gastroenterologist or take any drugs/meds.
Any words or advice would be greatly appreciated