just seeking any words of advice or comfort. 

Had colitis 10years

had jpouch has surgery 9 years ago by a very very good surgeon. 

Had a great result thus far. Lived life to its full. No issues really except A few obstructions, but got over that by amending diet a little bit. No drugs or meds since the day I left hospital 9 years ago  

However today  for the first time I’m passing blood. Only when I have BM. No other symptoms really. Pouch feels a bit “twitchy” but quite minor. 

The only other thing to mention is about a week ago I had 2 nights where I had leaks. Pretty solid ones. And I’ve almost never had leaks. And since then my BMs have seemed a bit off normal pattern. And I thought I noticed a small amount of blood a few days ago, but passed it off as possibly the spag bowl I ate, or the tomato sauce etc. but tonight there’s no way it’s food. It’s blood for sure. 

So quick google search makes me think pouchitis or cuffitis. Neither sound overly great and I have a tendency to always jump to the worst conclusion! I’m already worried I’m going to lose my pouch and end up with a permanent stoma! Or back on immunosuppressant drugs for life! Nooooo  

I don’t really have anyone to talk to, so asking here. 

I’m booked to see my GP in 2 days time. Currently don’t have a gastroenterologist or take any drugs/meds. 

Any words or advice would be greatly appreciated 

James. 

Original Post

Cuffitis is more typically associated with bleeding, but if pouchitis causes ulceration, that can bleed, too. You should probably find a knowledgeable gastroenterologist. It’s best to think about treatments before you give too much thought to pouch failure. Most conditions are straightforward to manage.

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