Hello All, we need a doctor ASAP to look at my husbands pouch and give us a solid opinion on what course of direction to take. He's had his pouch for twenty years. Long story short, there were so many complications 20 yrs ago with the original surgery (colon removed due to UC), and he had to have the original pouch taken out and a new one performed in Salt Lake City (we are from MT). He was then diagnosed with Crohns in 2008. We were told after a flex-syd this week that his pouch is "shot, a deformed lump of fiberous tissue" and the opening was so small into the small intestine that he couldn't even get his scope in there. He said the J-pouch needs to be taken out altogether and he will need an ileostomy bag for the rest of his life. My husband would like to explore other options like a BCIG, K or knock pouch, anything internal! Who is the very BEST physician to help us tackle all of this. We don't care about bedside manner, we care about SKILL! please HELP!
Original Post
