I started on Flagyl and Cipro for pouchitis at the end of April. after being on the meds with no relief, one week later, I was hospitalized through the ER for severe pouchitis and dehydration. I was there for 5 days. The GI on call did a scope and found some Crohns like patches in my ileum. I was treated with IV prednisone, flagyl and cipro and sent home with a follow up at the Cleveland Clinic 2 months later. Dr.S didn't feel comfortable treating me since he doesn't see a lot of jpouches and felt that CC would be my best choice. I saw Dr. lashner and Dr Shen and they performed another scope. I was largely healed but still showed signs of acute pouchitis. They ruled out Crohns through biopsies. I was sent home with another round of cipro and flagyl. I was off these meds for less than a week and I'm back in the hospital this time i made the drive to CC. Im being treated with prednisone, cipro and flagyl.
Here are some of my questions:
Has anyone experienced a particularly bad flare of pouchitis? And could I be expereiencing just one episode or perhaps more of chronic pouchitis episode?
They've mentioned starting on Humira, but I think I remember reading somewhere that it is not effective on pouchitis. I had Remicade during my UC days, so is that out as far as treatment options?
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