I also have chronic pouchitis. Been struggling for quite some time. My GI just prescribed Rinvoq. I am optimistically happy as it works !!! Was on Entyvio with little to no success. I take Rinvoq with my daily Cipro with a 3 day Flagyl rotation every three weeks. I have not felt this well in a long time. However, not without its moments. But, I deem it as a success !!
You should feel relief very quickly with Rinvoq. I have pouch inflammation big time due to UC/ Chrohn’s. Also, ask your GI about a maintenance of Cipro. I have an elongated pouch that allows bacteria to fester. The Cipro keeps it at bay. The Flagyl every three weeks clears any remaining bacteria out. added bonus is that the Flagyl increases the effectiveness of the Rinvoq.
you might want to try the route I am taking. GOOD LUCK !! Hang in there !! Try to remain optimistic even through the pain. The answer is out there !!!
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