Hello everyone. I'm Steve and this is my first post here. Here's a bit of my history. A year and a half ago I was diagnosed with a very rare condition (intestinal lymphangiectasia) which was happening in a large area of my colon and rectum. The lymphatic vessels in that area were bursting and leaking lymph fluid into my abdominal cavity, causing large volume ascites. After a year of being tapped nearly weekly, I had surgery to remove the affected areas of colon and rectum. I was on track to have the remaining part of the colon reconnected to the rectum, but instead ended up having nearly the rest of the colon removed because the ascites returned. It has been over three months since my last surgery and gladly the ascites has not returned and the problem seems to (hopefully) be over for good.
However, I am not fully content with my now permanent colostomy and had been wondering about the possibility of the j-pouch. I have read much about it and it seems like many pouches fail after a certain point for various reasons. I see that a lot of these have to do with issues relating to UC or Crohns, which makes me wonder if someone without those conditions might have a different outcome. I was wondering if there is anyone on here with a j-pouch due to a less common condition. I doubt someone has my specific condition, but I'm still curious. Thank you for your responses.
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