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@AmanSingh posted:

Hello Everyone.. I am from Delhi, India. I had my surgery in December, 2014. All seems to be going well. The initial year is more of an adapting phase and as time progresses thing settle in and its a comfortable normal. A new normal yes but comfortable. Its been 5 years and I am yet to meet or talk to another poucher. Its good to have found this group..



Hi Aman,

Who did your surgery in Delhi?

I had also last 2 episode of pouchitis. Antibiotics work very well. Tab. Cipro 500 and Tab. Flagyl 400 this work very well. now I am fine. No issues. But i read we need iron supplements. Absence of large intestine absorption is not done properly. I am taking iron supplements it's work very well. Please advice to Doctor as well.

Hi everyone, I’m from Hyderabad - 32 yo. I was diagnosed with FAP in February this year (no family history).  I undergone 2 stage J Pouch surgery 12th April and 20th June at AIG Hyderabad.
Got discharged today post takedown surgery and feel very lucky to have found this forum. Looking forward to hear your experiences as I get used to the “new normal”

As I complete my first week with the pouch, I already fear going to toilet because of the burning. Any suggestions on how to control it with the resources available in India?

Hello Manoj. I had jpouch surgery back in 2002 when I was 12 years old. I donot remember having burning sensation. All I remember is my life before surgery and post surgery. I did well post surgery, my quality of life was better.

I tell people to keep diary. Note what and when(time)  you eat and also your BMs. Gradually you will be able to figure out the transit time of things you eat. For me it's different for different food. It helps me plan my travel. I cannot help you with burning though.

@muks. Happy to know that you’re living a better quality of life post surgery. 20 years is too long ago to remember, so I can understand.

just a few curious questions

1. what’s the average daily BM frequency post 20years?

2. Do you still need to get up in the night?

3. I did have a couple of leakage episode while at the hospital but understand that it gets better with time with with the help of kegal. Did you have similar episodes and is it completely normal now?

4. Do you have any food suggestions with your experience which I should avoid? Being an Indian (Marwadi) I tried to find information on Indian diet here but could only find very little about it.

5. Are you able to do physical activities without any major limitations? (Background: I’m a cricket enthusiast so afraid if I would be able to put in similar effort after my recovery).

Thanks for your suggestion about keeping a diary; I’ll start it to keep a track of these things.

@Manoj Jain posted:

@muks. Happy to know that you’re living a better quality of life post surgery. 20 years is too long ago to remember, so I can understand.

just a few curious questions

1. what’s the average daily BM frequency post 20years?

2. Do you still need to get up in the night?

3. I did have a couple of leakage episode while at the hospital but understand that it gets better with time with with the help of kegal. Did you have similar episodes and is it completely normal now?

4. Do you have any food suggestions with your experience which I should avoid? Being an Indian (Marwadi) I tried to find information on Indian diet here but could only find very little about it.

5. Are you able to do physical activities without any major limitations? (Background: I’m a cricket enthusiast so afraid if I would be able to put in similar effort after my recovery).

Thanks for your suggestion about keeping a diary; I’ll start it to keep a track of these things.

1. Daily BM frequency 3-4

2. No I donot need to get up at night.

3. The only leakage episode I had was during pouchitis in 2010 which was treated with antibiotics. I donot remember if I had it after surgery. Also I didn't know abt kegel back then.

4. The reason I had this surgery is different from yours so I don't think what doesn't work for me will not work for you as well. I am assuming your digestion is fine, mine is not. Having said that I will list things which are problematic for me. Chillies cause butt burn, dry fruits cause constipation and Beans make me bloated, I consume spices and non-veg in moderation.

5. I was active in school after surgery. I don't think there will be any limitation in doing physical activities. My physical activity is limited due to Arthritis. You should try to strengthen your core and pelvic region. We are at a risk of developing hernia. Consult a physiotherapist if you can.

Hope that helps.

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