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Was on Stelara for a 3 years never really got the kind of results I was hoping for. The numbers for the amount in blood starting getting lower so they added Imuran.  After a few months still no better. So I switched to Entyvio. Did the recommended load infusions and tested and unfortunately the levels were very low. So now they switched it to every 4 weeks and I'm still not seeing anything after 3 months. The crazy thing is everytime I tell these doctors how bad I'm suffering all they say is it's part of the process. They said it would be a few months now there talking like 6 months . The worst thing is my rectal area is always hurting and swelling up. I imagine it's from the acidity and frequent bowel movements. I was just dialated again because it felt like my stricture was very tight.. Same old results, you have pouchitis. I'm wondering if anyone is using entyvio and had to wait this long.  I'm going on over 34 years with my pouch and for the first time I'm thinking about getting rid of it.

God bless you all.

Original Post

One of the reasons I’m still on Cipro and Flagyl is that I know there are no guarantees if I switch to a biologic, and the transition period is likely to require enormous patience and will probably be messy and unpleasant. I’m sorry you’re going through this, and I hope the Entyvio starts working for you soon.

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