I'm certainly not a kid -- but, I live in NH (Auburn, right outside of Manchester)and if you need to contact me feel free (I've had my pouch for 17 years). I'm sure as a Mom, you could use a shoulder/ear/hug. I can't imagine watching a child deal with this.
Have you been in touch with his surgeon/GI in terms of introducing him to children around his age? That may be a good place to start.
Feel free to private message me and I will give you my email address/phone numbers just in case you'd like to connect with me.
Huge hugs to both you and Sam (which just happens to be my grandfather/father/brother and nephews name
).