I am just the opposite. I felt my colon was nerve central. If I had anxiety before surgery, I would be running to the bathroom. I feel like they removed half my nervous system along w my colon. People think I am the most calm person they know. I was very high strung before. I think the mind & colon r connected somehow. You could be Emotional just from the drastic change to your body. It will pass. Take vitamins. Your body is probably deficient.
I had some anxiety before and it's worse now. I have to take a xanex just to go somewhere plus I have panic attacks around a lot of people - like at a grocery store. I also have PTSD which in an anxiety disorder.
I had xanex before surgery but didn't need to take it too often. Now it's daily and I've added panic attacks and not wanting to leave the house or drive to my problems.
I was on one antidepressant before surgery and my doctor added another one and had to keep upping the dose to the maximum. Plus she strongly suggested I get in therapy, several times. I did and she was right.
I had a total hysterectomy at the same time and put on HRT. Tonight, on the way home from dinner, this is what I said to my honey. "I'm not having hot flashes or nightsweats so that is supposed to tell me that my hormone patch is working so it guess my problem is everything else I've been through in the past year. Ever since I woke up, I'm been an emotional basket case!" He laughed. I said "I'm so happy you are amused by me being emotional!" He said "it isn't that you are emotional, it is how you said it!"
So yeah.. I would have to say I'm WAY more emotional than I was a year and a half ago. Before all this started for me.
Yup, It ebs and flows but it is definetly there...some days I am the picture of zenitude and others hubby dresses himself up in Hockey Goalie gear to make it through the night...I don't even realise what I am doing/saying but to his credit he now knows that an unsolicited hug goes a long way get me off of the ledge. Along with the emotional frazzels and the unescapable tears I also have extreme fatigue. That said...after a while you get accustomed to bringing a box of kleenex with you to the movies. Hope that you find a good balance Sharon
What the heck is the reason? Is it just because we have been through so much? I just now took an Ativan because I felt another panic attack coming on...seems to have kept it at bay. Also have other stuff going on in my life as mentioned in a different post, but I definitely think the anxiety has gone up since the surgery 7 years ago... I just started seeing a new psychologist. She seems great so far...I highly recommend therapy as long as it is with the right person.
What an interesting discussion. My Dr very recently started me on Prozac and recommended therapy. I have yet to make that call, but now think its in order. I am nearly 3 years post surgery and def seem to be getting worse with mood swings, anxiety, etc. My endocrinologist thinks it may be hormone related and just ran a full hormone panel. Never thought to connect it to the surgery.
I think a good number of people subjected to invasive or physically and emotionally difficult treatments often succumb to symptoms similar to PTSD if not PTSD itself. Here is an article providing some background. Although this article focuses on cancer patients, it seems reasonable that a sub-set of j-pouchers are likely to experience many of the same issues.
The gut and mind connection has been tested and studied. The guts are called our 2nd brain. There are books about it. I think I'll probably be on some kind of antidepressant the rest of my life. I'd like to not be on such high doses for that long.
My daughter just read a book about it so she can do whatever it suggests to avoid having more GI problems. She had 4 polyps at age 24. They did a colonoscopy because she noticed blood and I had UC. She takes Metamucil daily as she was instructed to do.
BTW I did not connect with the first therapist I went to. It took me several months just to get myself to make the first appointment. The 2nd one a saw and am currently seeing is great. She understands chronic pain etc.
She is an EMDR therapist too for PTSD. If you read up on EMDR it sounds weird and it is hard to explain. The way she does it has nothing to do with eye movement. My step-sister suggested I find a therapist that did it and she was right. I've remembered things buried in my mind that just amaze me.
I am going to jump on this thread! From what I gather (9 months out - j poucher and still struggling) when we remove a vital organ we are missing out on several body ingredients (that is what I am calling it) that we all need. That is what I have noticed since surgery. I was thrown into menopause right away from surgery didn't even have a grace period..surgery at age 48 now 49. That is a struggle but yet nothing compared to what we have all endured with surgery. Then when I have spoken to my GI that the colon must contain more than just the function we know of. What first comes to mind is serotonin which GI has agreed with me. TE Marie I can see why it is considered our 2nd brain. When they say we can cure UC not sure I am convinced that this was the cure or that there really is one.
I have tried just about every anti-depressant there is. Have been to a few psychologist and a psychiatrist. Nothing seems to help. How do you decide if you are depressed or just completely lazy. It just takes everything I have to even get in the shower most days. I work as a contractor so can work when I want but have been doing so little lately my bills are really getting behind now. Any suggestions on how to get more motivated? I am sorry this is happening to so many but it is kind of nice to know I am not the only one dealing with this crap.
Janita, Go to a different therapist without all the big titles and initials, seriously. I went to a psychologist who said nothing was wrong with me. Then I went to an licensed social worker and some other designation who also is trained in EMDR, who asked me standardized questions and received the proper diagnosis. The first guy was goofy. If you told him, "It's hard to get out of bed" he said to add the word "yet" to it. It's hard to get out of bed "yet". I called him the "yet" doctor. I wasn't driving, I had a hard time leaving the house. I had anxiety attacks thinking I was having a heart attack, etc. Plus like you had a hard time getting out of bed. The getting out of bed problem didn't prevent me from getting out for the restroom...... I doubt you are lazy, keep looking until you find a therapist that can help you. If you are not on an antidepressant see your regular doctor and he/she can prescribe something for you. That may be all you need. If you are not motivated to get out of bed when you have bills to pay, I'd guess you are depressed and/or have anxiety. I'm not a medical professional, just have seen a lot of them as a patient
I never had anxiety or depression until this surgery. I had the surgery almost 5 years ago and finally 3 months ago went to the dr. to get put on an anti-depressant/anxiety med. It has helped tremendously but there are still times I miss the happy go lucky person I used to be. I know that we are all so fortunate, but at the same time----it stinks sometimes!!!
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