Is anyone taking chronic antibiotics for intestinal overgrowth, without C diff. If so, do you cycle between drugs; what drug and regimen?
Original Post
Replies sorted oldest to newest
I'm on xifaxan for it. I'm allergic to many many antibiotics and have a history of cdiff. So it is scary to be on it. Dr. Shen said I may have to be on it for life as I have had so many surgeries and hence adhesions, etc. But he wants me to try to pulse dose it. Meaning take it for two weeks and then stop for two weeks and resume, etc. Haven't been able to do that yet as the horrid symptoms return within 2 days of stopping xifaxan. I also changed my diet to no sugar and lower carbs, but didn't see much difference.
However, just recently the xifaxan stopped working. I am extremely underweight from this sibo thing. Dr. Shen's new PA recommended I try a low FODMAP diet. I have now been on that for almost two weeks and it has made a HUGE HUGE HUGE difference. Ready to have another go at stopping the xifaxan any day now! I also have an upcoming appt with a CC dieticien to better understand the low FODMAP with my perm. ileosotomy and figure out how to manage things via diet and gain weight and trying to get off and stay off antibiotics.
However, just recently the xifaxan stopped working. I am extremely underweight from this sibo thing. Dr. Shen's new PA recommended I try a low FODMAP diet. I have now been on that for almost two weeks and it has made a HUGE HUGE HUGE difference. Ready to have another go at stopping the xifaxan any day now! I also have an upcoming appt with a CC dieticien to better understand the low FODMAP with my perm. ileosotomy and figure out how to manage things via diet and gain weight and trying to get off and stay off antibiotics.
Thank you, Liz...Xifaxan doesn't work at all for me. WHat is this FODMAP diet? I will look online. Dr. Shen is working with me on this too. Again, much thanks.
Xifacin does nothing for me.
Shen at CC put me on Tindamax.
Diet is key though and can take a full year to get the guts in check on it. High fat, low fiber diet. I cook paleo usually so I already follow that. I the times lately with cupcakes around. :/
Shen at CC put me on Tindamax.
Diet is key though and can take a full year to get the guts in check on it. High fat, low fiber diet. I cook paleo usually so I already follow that. I the times lately with cupcakes around. :/
Yes, the Shen diet is something I too am trying. But the lack of veggies made me iron deficient. Nevertheless, it does definitely help.
The antibiotics make the biggest difference though. Changes from the KP running my life, to me running it. Much less frequent emptying and no urgency. Took amoxicilin for a couple of weeks until it stopped working and then cipro for 6 weeks, but now that's also ineffective. Will start augmentin as soon as Shen calls it in. Trying to find a cycle that I could use permanently.
The antibiotics make the biggest difference though. Changes from the KP running my life, to me running it. Much less frequent emptying and no urgency. Took amoxicilin for a couple of weeks until it stopped working and then cipro for 6 weeks, but now that's also ineffective. Will start augmentin as soon as Shen calls it in. Trying to find a cycle that I could use permanently.