Hi all. Was wondering what some of your experiences are related to long-term antibiotics - particularly whether you do a "short course"?  "long course"? or steady daily sustained course? 

I was on daily sustained for years/months stretch but new GI is suggesting maybe better to see if I can do a course and then go off for a while.

I typically see instant improvement (same day) after starting antibiotic. Does anyone do just a day or two? or do 3-5 day course? or do most people do full 1 or 2 week course? or just stay on indefinitely?

Curious about experiences of others ?

Thanks for input ! ... -Mike

~10 years with pouch - abscesses/fistula, cuffitis, chronic pouchitis / currently on Humira, Canasa, antibiotic and VSL3

 

Original Post

I’m on antibiotics all the time. I tried stopping them, and my symptoms returned in about 5 days or so. I decided that it wasn’t worth having the symptoms. For years Cipro alone worked, and later I needed to add Flagyl. If I had multiple antibiotic choices I would rotate among them, but unfortunately the others just never worked for me.

I have been on antibiotics for 16 years. I basically had to accept this, but was put on Humira about a year ago, so just tried to get off antibiotics - not too successful. Like Scott, after 5 days things started acting up again. 

Interesting....so far that has been my experience...... I stopped and after about a week started feeling the burning....and overall rougher with everything.  I tried to hold off by changing diet and adding immodium, metamucil and actually felt like it helped for a few days but I didnt make it thru that 2nd week before I went back on antibiotic.  hmmm......

The only thing that ever delayed antibiotics for me was a heavy (and expensive) dose of VSL #3. Now I just use it to make the antibiotics more effective.

I do the expensive VSL3 as well.  Have never been able to conclusively know whether it helps but my GI is very in favor of it.   And I'm on Humira as @kta mentioned.

For me, my onsets/treatments were :

-soon after surgeries abscesses/cuffitis - Canasa GREATLY helps me with cuffitis. Helped me immediately years ago and still helps me greatly ~10 years later.

-later ~5 years after surgeries added fistula(s) to mix- ultimately added Humira to address abscesses/fistulas and going on 2.5 years of Humira w no abscesses/fistulas now knock on wood.

-chronic pouchitis in last few years - long term antibiotics.

I'm over 10 years with pouch and despite it being ongoing chronic multi-threaded challenge (above) I'm still glad I went pouch route.  Currently feeling like the chronic pouchitis is my biggest demon to battle. 

Last edited by MikeWithPouch

Hi,

well i just got off 1 week of flax and 10 days of Cipro. the itching drove me nuts. anyone experiance the itching from the Flax?

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