exausted from commuting into NYC every week, broke too! Met with surgeon yesterday at Cornell. Nothing good ever comes from seeing a surgeon! I'm a little confused so bear with me. After all the tests over the last three months, here is where Jeffrey is at.
found the leak!
thursday Jeffrey will be having a straw like something or other inserted rectally to drain the abscess. It's about the size of a golf ball. Surgeon will leave that in for as long as it needs to drain. Already warned about what's going to come out. The plan as I understand it is that they will keep him in the hospital over the weekend and Monday attempt to fix the leak which is at the suture line of the pouch. I don't how they can do this rectally, but they are going to give it a shot. And the good part is Dr. Milsome is going to be in the OR! After that, I'm not sure what will come next. Has anyone had anything like this done? Dr. Shulka is hoping the fix will happen and work. I think the leak is at the top of J end, the little side. But I guess we can't do much until we get this abscess taken care of and get him on the proper meds. Yesterday, I think Jeffrey finally had enough of the discussion with the doctor that he put his head phones on and started listening to music. He has not behaved this autistic in a long time. We are all so burned out. How do any of you just stop crying? I am amazed at all of you for your bravery and determination. I think I would have given up by now. I've had my own health issues that at the time I thought were bad, but nothing like this. You guys are truly amazing! I don't know how you continue to do what you do.