Hi Everyone! I have not posted in a while, and I just wanted to post this to make an announcement and get support from you all. I have told many people in my life, but you guys relate the most. After having what I thought was pouchitis for 2 years my surgeon discovered I had dilated bowel. I had adhesion removal surgery, and this did not help after they found out my symptoms were not from pouchitis (urgency, pain). During this exploratory surgery they found that my pouch had narrowed and was not where it was supposed to be, and my pouch had connected to my right ovary due to adhesions. This was released. However, I cannot have the narrowing and misplacement of my pouch fixed without a major surgery. My surgeon told me that I have been living a "new normal" of running to the bathroom and having pain for some time now (I had my jpouch surgery in 2010) and he believes he can improve my quality of life. I am only 19. I just started college when my symptoms started to get worse, which lead me to being hospitalized, having scopes, barium enemas, and eventually adhesion surgery and now my pouch reconstuction surgery this april. I am scared, but excited to finally feel better and improve my life for the future. My surgeon told me this is major, and cannot be done laparoscopically. He also told me I will have a temporary ostomy. I would appreciate support from you guys.
Thank you for reading, sorry if there are typos I just wanted to let some fellow j pouchers know what's going on with me.