Skip to main content

Morning!
Ain't it a great day!?! Ok, yep, my meds are still working! 6 weeks of bliss so far!!

I've been reading posts this morn and noticed two that address adhesion pain and partial obstructions from adhesions. Let us note that, as I am an overachiever, I make gobs of scar tissue! And with pouchitis, my understanding is that there is additional scar tissue with each bout as a result of the inflammatory process. (Jan? Anyone?) I've had two surgeries for obstructions and gobs of pain from adhesions.

There is butt one thing that helps, and only one thing that I've found to break up the scar tissue: Myofascial release, a.k.a., Myofascial massage. It hurts super bad when the therapist (or now spouse, cuz my hubby learned how to mash on my belly from the therapist) works on breaking up the scar tissue. The pain for me stops as soon as hands are removed from my flesh, although I highly recommend icing post mashing to help with pain and inflammation from mashing.

You can search for these therapists in your area on the interweb. Gotta love the interweb! You can also try calling some different PT places to see if they have a Myofascial PT on staff or, if not, maybe they can tell you where you can find one.

For me, this has been the only way I've found to relieve the constrictions of the scar tissue without surgery. Again, it really hurts when they're doing it, so pre-medicate (take drugs, get drunk, smoke a joint, whatever your pleasure before you go) to help with that. And it is not long-lasting pain. It's well worth it!

Take care!
Jillsy
Original Post

Replies sorted oldest to newest

No, Jilly, pouchitis should not contribute to adhesions, because adhesions form within the abdominal/pelvic cavity in response to trauma and/or inflammation in the specific area.

Pouchitis is confined to he mucosa inside your pouch, so never communicates with your abdominal/pelvic cavity. If you have inflammation/infection that escapes the organ, such as peritonitis, endometriosis, pelvic inflammatory disease (PID), or bowel perforations, adhesions can form from that.

Pouchitis can certainly contribute to the PAIN of adhesions, because of the cramping and gut churning it can cause.

I'm glad you've found treatment that helps. Maybe some day they will figure out how to surgically release adhesions without stimulating new ones in big adhesion formers like you.

Jan Smiler
Still, beware of hernias...an Unexperienced practisioner could very well do as much damage as good...
My GP tried to 'feel my organs' twice and pushed right through (yes, my connective tissue is particularly weak)...
Just make sure that they know what they are doing and make them stop if the pain is too much.
Sharon
My problem exactly Sharon. I had incisional hernia surgery and it was a "big" hernia. He opened up my entire incision and I have a lot of mesh. My father has an abdomen of broken mesh from his open heart surgery so I'm afraid to massage too hard. He'd had hernia surgery prior to his heart surgery and the mesh got messed up during the subsequent surgery. I do apply pressure and massage to the affected area(s) myself when I'm experiencing partial blockages but don't venture to the rest of my abdomen.
Last edited by TE Marie
Thanks Sharon, I still have my usual everyday abdominal pains but haven't had any partial blockages for a few weeks. I've been limiting my diet and gradually adding back in more solid foods. So far so good. I still am not interested in meat other than baked chicken or sandwich meats. That's fine as I get plenty of protein from my plant based protein shakes and Greek yogurt. Now if I would just stay away from the chocolate ice cream.... my vice, lol.

I'm going to find out how large the mesh is and where it's placed in my abdomen so I can work on these adhesions from the outside. My first surgery was 3 years ago on 11/2 and the third anniversary of my take down is coming up on 12/29. Seems like it's been longer...

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×