I had my take down 4 years ago, and for the last 3 days I’ve had an intense ache in my lower back/ bum/ top of my legs.  Feels so heavy, and hurts to even walk.  It seems to come on in the evening too.  Passing stools is very painful, I already have fistulas and raw skin so butt burn is always there, but this is even worse than normal.  Also don’t feel like it’s empty- almost like my anus is swollen and not letting everything out (sorry, but don’t know how else to explain it!) 

Could it be pouchitis?  Or is there something else? 

Original Post

This doesn’t sound like pouchitis to me. It might be an abscess in a particularly inconvenient location. A less likely possibility, I think, is a back issue. When I had a badly herniated disc it got very, very painful to poop. I think you probably need a doctor’s appointment soon.

Thanks Scott F.  I didn’t think so.  I was wondering if it could be muscular/ nerve pain as I’m always slightly clenching because of the butt burn! 

I’m now booked to have my gall bladder removed in 3 days time, so I’m hoping that helps with the acid and as a result eases the burn... but as with everything to do with this disease, it feels like a constant trial and error process. 

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