Aaawwwwwww I know you are so overwhelmed but you will get through this. You know your body so if your in pain be persistent with your Drs. I had a situation and I had a lower left side pain but very low and they did scan after scan said nothing was wrong. I finally went to Cleveland and they figured it out. First of all you donโ€™t have to go to Cleveland my point is some of these Drs donโ€™t know what it is so they push you aside in a way. I just want you to make sure you tell them and keep on them if your in pain. You got this stay strong ๐Ÿ’ช๐Ÿผโค๏ธ๐Ÿ™๐Ÿป

Ashley Doviny I can't imagine 25 surgies.I am in the hospital at Johns Hopkins now . Another small bowel obstruction. I saw Dr. Remzi last month in New York. He proposed doing a pouch reconstruction. I was overwhelmed and couldn't imagine having this 3 part surgery and surviving it mainly because of my age. I am 78 y.o. Who operated on you at Cleveland and how hard were the surgies on you?

 

 

Omg my heart aches for you. I swear to god Iโ€™ve been there and I look back and go how did I do this. I stayed 3 months the first time my colon ruptured because everything that went wrong did. I ended up with candida in my whole body double pneumonia etc etc that was in Atlanta. Obstruction after Obstruction the wheels just came off. I made it through by the grace of god. All this was in Atlanta it just kept hitting me I spent basically 10 yrs of my life in and out of hospitals. Long story short I kept saying I have pain on my left side no one would listen plus it didnโ€™t show up on scans. Finally after moving to Charlotte to be with my mom I was bed ridden for 8 months with TPN and home health care j got a massive fistula that came out of my belly button or where my belly button used to be. I made it to Cleveland and they found a microscopic leak in my Jpouch it had walled itself off from the rest of my body so here we go again. They pulled that out and later long story short my third Jpouch was made. I saw Dr. James Church Iโ€™m pretty sure he had something to do with inventing the Jpouch heโ€™s from New Zealand he has people from the Middle East coming to see him. They are building a part of Cleveland Clinic over there. I have been fine with my Jpouch but I get structure a lot and was itโ€™s hospitalized for the second time in  6 months I had some kind of fluid in my abdomen. Iโ€™m seeing my surgeon here tomorrow he trained under Dr. Church and Iโ€™m going to ask him if I need to go back there just to look at all my scans. My surgeon is wonderful but I have only a little bit of small bowel left and Iโ€™m just the 1% itโ€™s scary I only trust him and Dr Church. Its like Disney World there for me. What can I do my god I wish I could come be with you. I have all the contacts at Cleveland let me know. I swear I wish I could talk to you I know where you are in your head because when I think of going through that again I think to myself do I have it in me anymore. You will get through and I hate when people say that but I can ๐Ÿ˜€ because Iโ€™ve been there. Please please let me know how I can help you???!!!!!๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿปโค๏ธโค๏ธโค๏ธ

Ashley 

I can't imagine all that you have been through. The mental and physical challenges must have been almost overwhelming. I am happy that you are doing well now and that Dr Church will be able to help you feel even better. Does Dr. Church do the 3 part surgery that Dr. Remzi does when he does a jpouch reconstruction?Remzi was at Cleveland before he went to New York about 3 years ago.Thank you so much for posting. I will try to be hopeful and post my decision. My Doctor here in Baltimore thinks that he can probably help me with one surgery but I am not sure about that. Did your surgeons suggest just converting to a permanent ileostomy? I hate to ask you to post such personal information. I am not very knowledgeable when using this site and don't know any other way. 

Marji

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Hi. Omg I donโ€™t cate Iโ€™ll tell you anything. I had no choice my colon ruptured but I knew that I could get the Jpouch. The 3 part thing I donโ€™t remember what they are doing now but heโ€™s cutting edge. The first one my colon was taken and I think it was a 3 part. The second and third they pulled down more small bowel and made a Jpouch then bag on for 3 months then just connected right to the Jpouch it was pretty easy to connect it only about an hour operation. Itโ€™s amazing what they are doing now. Dr. Church has a woman that trained under him and is supposed to be the new guru. She does complicated surgeries on people with multiple Jpouchs and fistulas etc. I got good news from my surgeon today. They think I had an acute bout of peritonitis and itโ€™s gone he said he would cat scan me in 3 months to see if fluid is still there. They killed me with flagyl and Cipro IV drugs for 3 days and I think that did the trick๐Ÿคž. What is going on with you? Do you have a Jpouch or colostomy bag? Iโ€™m sorry to ask again?

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