i don’t even know if this is a jpouch / colectomy related problem however I’m desperate for any help/ advice.
im in the UK. Had colectomy with jpouch created 16 yrs ago. Ongoing pain due to adhesions which has resulted in several small intestine obstructions requiring emergency surgery over the years.
I’m a 51 yr old female, no menopausal symptoms, period still regular etc.
i have have had 3 haemorrhagic ovarian cysts in the past 10 yrs, luckily slowly dissolving without need for surgery.
thats very basic summary, now to current issue; approx 10 days ago I started with general abdominal pain, this increased over a week until Thursday 4 days ago. The pain is severe and has settled in low abdomen especially right hand side and radiating through to lower back. I can barely walk, when I do move, the pain shoots down both my thighs as far as my knees. I can barely stand straight, therefore when I have to move I’m slouched over, bent over like an old lady! The back pain is in spasms. When I lie down on my back the pain eventually settles.
Nits so bad at times I find myself whimpering like an injured animal - not good!
on Saturday evening I called NHS 24 who sent me to their out of hours clinic. Luckily I was seen by a GP from my own doctors surgery who I kind of know. My temp was slightly raised but not alarming and my BP and heart rate also high likely due to pain. He examined me and couldn’t find any obvious cause for pain. He gave me options - 1. He would take bloods and have them analysed by lab and results within a few hours, he would call me at home with results and if necessary get me back up to hospital or 2. Admit me and get better pain relief and and an ultrasound scan faster than if he referred me to have scan done via outpatient appointment.
I should state that I live within 4 miles of hospital. So I chose first option as like most of us I hate being a hospital patient. So he did call me within 2 hours telling me all he bloods he ordered are within normal range = nothing urgently wrong with me. So obviously great relief, however no solution. 24 hrs later and pain has not subsided at all, I still whimper and moan. I will eventually get an appointment for abdominal ultrasound as GP agrees it may be another ovarian cyst which has perhaps twisted my ovary.
So - please, please, can anyone give me any advice? Im
at wits end. I should also say I have FAP, and take OxyContin both modified and immediate release, Buscopan, ibuprofen and paracetamol . The Oxy is zero use as I have taken way more than prescription dose over the past few days and it hasn’t helped the pain at all. Obviously I told the GP about the extra I was taking as I was at wits end. Now I’m lying in bed with hot water bottles surrounding me for relief/ comfort.
Any advice gratefully received!