Skip to main content

Hello all.

Just wanted to say hello from Australia.  I’m so happy to have found you.  I have Lynches syndrome and have just had my third re section in 15 years on Nov 5 - went into that surgery not knowing exactly what procedure I’d be having done.  

There were three options and I was lucky enough to have a surgeon who worked really hard to use the tiny blood supply I have left and the last 10-15 cms of my colon she was able to salvage to reconnect me me back up.  But I thought I’d have a JPouch hence my search for support.

I feel sure a JPouch or permanent stoma is in my future given the genetic cancer I have, and Im grateful I’ll have a wealth of knowledge from you all to call on when it finally DOES happen.

My own experience : initial resection with stoma for 3 months, second resection 5 years ago and last one just on Nov 5 this year.  I’m so stunned at the lack of info available from Drs etc, it’s true that we become more knowledgeable than them 😉 out of necessity about the “little” things...which happen to be big things to those facing them.   I’ve been following a low FODMAP diet for about 2 years which has been life changing.

I find you all truly inspiring and I can’t begin to tell you how good it is to read familiar stories and see issues I myself am dealing with.

Thank you all for sharing and being so brave and honest.  You’ve helped me immensely already.

Original Post

Replies sorted oldest to newest

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×