Yesterday I was ready for a whopping pity party...miserable, in tears, doubled over in pain and hiding it from my students.
I just traded one set of pains and problems for another.
My surgeon fixed a bunch of small problems (hernia, obstruction, adhesions) and that is great but when he picked up my pouch he opened another can of worms.
The staples or sutures that he used to tack it down in 2 rows have come partially undone (I get used to that happening but didn't expect the result)...leading to my pouch hanging off of only a couple of staples...and when it fills up...Wow! The pain. Feels like I am being stabbed from the inside out. Like they are being ripped out of the wall. The pain takes my breath away and bends me double. I am 6 weeks post of so I thought that I would have healed a bit and it would have consolidated with the wall...apparently not.
The pouch is hanging cockeyed so intubation is hit and miss and the tube hits some very sensitive spots before finding its way in. I get frustrated and yank impatiently when in school bathroom stalls (not a good thing) and hurt myself more.
The sacroilitis is back too...Worse when the pouch is full (tells you something) and when I wake up in the morning I get the double bonus of both the stabbing pain and the scaroilitis. (I call it full pouch syndrom now)
I know that I need to call my surgeon and have a contrast exam done but what can I say to him? Sorry, take out the staples? Put it back the way it was when I was complaining that it was down? He will think that I am crazy. (maybe I am)
Its like every time that I fix one thing something else goes wrong. I can't get it right.
The bits that were being crushed when the pouch was down are throbbing now whenever it fills too...not sure if it is related or if it is a totally other problem (ovaries?)
I am back on NSAIDS 2-3x/day and I still have 12 tramadole that I only take when I can't take it any more and break down...About 2xs/week.
I never took pain meds before.
So, I guess that this is a noisy pity party. I know that there is nothing that can be done, I won't ask my surgeon for another go at it. I can only keep my pouch as empty as possible and intubate often. This sucks. I thought that I was past this and could live my life freely.
Crappppp!
Sharon