Skip to main content

Yesterday I woke up to a clock on the wall but I couldn't figure out what it was as it said "20:14". A recovery nurse said it's after 8 in the evening.  I have a new ileostomy on the left side. My surgeon says she had work through a lot of scar tissue - like peeling it off of the hernia mesh and it all over my intestines.  I am grateful that she took the time to do it all. 


If you have the choice do not have open operations!  My first open abdominal surgery was 19 years ago and I had 3 open surgeries in 8 months the end of 2010 & 2011.  2 j-pouch and the last one was the hernia one that required the mesh. 


Am I happy?  I am happy that she put the stoma where I wanted it as the other options were around my waist.  I'm happy the surgery is over with. I thought the medical staff I'd had it the past were tops but Mayo Methodist Hospital medical professionals really are the cream of the crop, top shelf, and excellent. The hospital is state of art but you are only as good as your employees - no matter what your business is.  I am happy my local GI sent me to my GI here a year after my j-pouch surgeries.  I am happy that I live just 3.5 hours away from Rochester, MN.


Last edited by TE Marie
Original Post

Replies sorted oldest to newest

Am glad you came through ok.  It is a tough time for sure a grieving process of a sort.  It helps to sort through and find the things to be happy about as you have found. Time to move forward, I hope when my turn comes I'll do as well as you.  Remember to start to move as soon as you are able even if it is just your legs in the bed!! All the best . Shawne 

I might be released this afternoon and have mixed feelings about that. My husband is staying in a hotel across the street and our plan is to stay there at least one or 2 night after I'm released.  


I have been walking walking walking and looking at all the beautiful art adorning the ward's walls.  I love the art work throughout all of the buildings here.


Another good experience with the surgery is I didn't come out of surgery with a pain pump.  They have found out how to administer medication through the spine before surgery that has done away the need for pain pumps. I've been on one pan med through an IV port, toradol, and oral oxy, Tramadol, Tylenol and ibuprofen. I asked about the ibuprofen because it's an nsaid. They said it's good to use after surgeries but shouldn't be used for pain on a steady basis.


I haven't had surgery for 4 years and maybe this is common practice in other hospitals now.  I didn't miss the self dosing pump

TE Marie,


Very happy to hear you are doing well!!  Who was your surgeon?


I recently had surgery at Mayo too (in March).  Regarding pain meds, with my lapro surgery, my regimen was IV Tylenol and Toradol, but I did have a pain pump for a couple days (Dilaudid), which I hardly used.  Then a week later, I had a second surgery, open that time, and had a morphine pain pump for a couple days.  So, I don't think they have done away with the pain pumps, but may depend on the surgeon and type of surgery.  They did administer pain meds directly into my abdomen during the surgery that lasted for days too.

Congratulations TE,

I am so proud of you for having the courage to go through yet another surgery...maybe we can finally close the book on all of the pain, anguish and horror of the last 4 yrs.

You deserve to now live a happy and healthy life.

Keep us posted on the progress and stay strong and healthy.


PCAs or "pain pumps" still have their place for control of post-op pain by allowing the patient more flexible control over their pain needs, which usually equates to less pain meds used.

Spinal pain meds are not appropriate for all patients, nor are oral always appropriate. It really just is patient to patient and case by case.

So glad you're doing well!

I ended up with a bad UTI and pneumonia so ended up staying in the hospital for 6 nights.  I'm still fighting off the UTI and trying to get a wafer to last longer than a day.  Some pretty ugly skin underneath it.  I'm seeing a stoma NP at a wound care clinic, twice a week but am backing off to one day as I think I'm right around the corner of proper appliance attachment.  She wants me to do  change it at least every other day or daily.  Good instruction and she's local so she is writing my prescriptions and I can fill it locally. No more mail order great!  Things have changed in 5 years.


Thanks everyone!


I was diverted to a permanent ileostomy and she also spent 3 hours lysing all of the adhesions in my abdomen.  She did it all laproscopically so I'm hoping they don't come back   I still have my j-pouch and don't plan on a future take down.  Hopefully it won't cause me any more problems. If it does then it will be excised.  I tried my best for close to 5 years and it just was just not cooperating and failing in too many areas to keep using it.  

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
Link copied to your clipboard.