Hello everyone, hopefully everyone is okay?
I want to give an update about my recovery. Yesterday it's been a year since my takedown and 2 years since I got sick. During my recovery, this date was always a kind of lifeline. Everything will be fine after 1 year ... right?
At the moment I go to the toilet about 5/6 times. I use 6 immodium and a teaspoon of psylium fiber for dinner. I still don't eat vegetables and I am very careful about what I eat.
If I compare my current health with 12 months ago it is really going well, but honestly I am still not satisfied. I only had UC for 1 month before my collectomy and never had any problems with my gut. This sudden change in my life is still very difficult to accept. That's probably why I'm still not satisfied, although there are really noticeable improvements.
The main problem at the moment is that the pouch is not stable enough. Every day is different. One day I feel great and then boom..a relapse. For example. 3 days ago I only went 4 times. The bm's went smoothly, the jpouch was empty and i didn't feel a thing. Yesterday i went 10 times, had itch all day. These disappointments are sometimes difficult to cope with and make you tired and sad. Especially because i don't know the reason why it's happening.
I still often feel uncomfortable because I feel something is in my anal canal. I just feel it too much and therefore can never really relax because it's always there. Do not get me wrong. I know where i'm coming from and I am greatfull but pfff sometimes i just don't know it anymore. I will just continue with the recovery and see how it is after 2 years.
Some advice for those who want the surgery. Recovery is difficult both physically and mentally. You have to be mentally strong to accept a relapse in the recovery and deal with the disappointment. It's never a straight line, but there are going to be improvements over time.
Sorry about the rant. Stay safe.