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7 days ago i had my takedown surgery down and would like to know how long should I expect Butt Burn. Does it go down after few months once you have introduced regular fiber foods .

Posted by Rpatel ·

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I have had a problem with butt burn including some open rash since my takedown in October 2012. I have tried the expensive creams and nothing seems to work. The best cure or fix that I have found is a low acid diet. I also suffer from pouchitis and psoriasis so they are probably contributors. I just make sure that I keep myself clean after a bowl movement.

 

My husband had his surgery 4 years ago and has gradually identified the foods that give him butt burn - track your diet and eliminate any foods that are especially bad and gradually add them back in one at a time. He has to avoid dairy and sugar. In the beginning he had to avoid gluten as well but has gradually been able to have some bread products - I make bread for him with organic ingredients. Good luck...

My solution to that is baby wipes.  Since I've been using them all the time my butt doesn't burn or hitch anymore ever.  Because or BM is pretty liquid it gets everywhere and they only way to really take it all off is with a wet baby wipe (or cloth).  Once you do that every time you go to the toilet it won't hurt or hitch anymore ever.  If you have bleeding or the anus or sores, then use a BM catheter, this way you give a break to your anus.  That is been working for me for the past 8 years.  There is also a cream with 1% dibucaine that freezes the skin and it helps also.  Good luck

 

The key is finding the foods your system will tolerate.  I generally don't tolerate a lot of dairy products so I shy away from them, or have them in low amounts.  However, lately I have been eating a cup of 4% cottage cheese with lunch everyday and have not been on probiotics for about 4 months.  Every once in awhile will get a loose stool, but a couple of loperamide help.  Activia is a good probiotic, however I bought the Sams Club knock off, same ingrediants and about 50% cheaper.  Had my take down in 2006 and battled pouchitis a lot.  Now I am at the point I can feel it coming on and hit it fast with about 4 days of Flagyl and knock it down.  Happens about every 4-5 months, so Doc is good about making sure I have enough on hand to get it under control fast.

 

I had J pouch surgery 33 years ago and I use to use Bag Balm to sooth my backside after numerous explosive BM's.  After 25 years a GI doc at a Texas teaching hospital said they recommend a probiotic to their patients to help with BM problems. I take 2 capsules of PB 8 Acidophilus 2 X's a day. Vitacost sells it for about $9 for 120 capsules. More expensive brands may work better, but I have never tried them because of cost and PB 8 worked for me.

Insurance will most likely pay for VSL probiotic if your dr writes a script for it.  My takedown was in 2005 and I remember it being about a month before my skin started to adjust.  I've found a good over the counter cream is Triple Paste for diaper rash.  Very thick, lasts a long time and it doesn't burn.  Also second what others have said about diet.  Find out what works for you.  It will take time and everyone is different.  For me, a low carb (ketatonic) diet has done wonders, especially for my pouchitis.

Originally Posted by rivermartin:

Insurance will most likely pay for VSL probiotic if your dr writes a script for it.  My takedown was in 2005 and I remember it being about a month before my skin started to adjust.  I've found a good over the counter cream is Triple Paste for diaper rash.  Very thick, lasts a long time and it doesn't burn.  Also second what others have said about diet.  Find out what works for you.  It will take time and everyone is different.  For me, a low carb (ketatonic) diet has done wonders, especially for my pouchitis.

 

My doctor wrote a script for VSL#3 but my insurance will not pay for it. I still buy it because it's worth it. An FYI.....Taking too much is not always good; I OD on probiotics in the Spring (exceed doctors dosage thinking more the better). Symptoms were racing heart at rest and excessive gas. Did a heart monitor, scan & tread mill everything was great. Happened to go online to look up side effects of taking too many probiotics, my symptoms matched. Lowered my dosage to one in the morning an one at night, symptoms went away. With a Jpouch the excessive gas was causing a real issue.

I find the best thing is to regularly wash up with warm water and an organic non abrasive soap. Especially in the morning after you eat breakfast and get everything out from the day before. Also every morning I eat plain oatmeal mixed with Metamucil powder. That meal usually stays in my system for 5 hours before having a bowel movement. And oatmeal Metamucil combo gives me extremely solid formed bowel movements.
It took me 14 months to recover from the worst of it, which was right after surgery. I still get what I call "busy butt" if I eat too many peanuts, or any high iron food, iron supplements, basil, or super spicy food. I use Konsyl powder, Anusol 2.5%, Calmoseptine and Tylenol 4 when it's bad. You'll figure out over time if you have any bad foodd.
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