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Reply to "Zebras, not horses"

Well said Sharon! I'm curious if you were tested for this, or if it was not necessary due to your many symptoms. I have approached my doctor about this, but I feel she knows too little about it - disregarding my lack of internal scaring, end ileo prolapsing, multiple pouch revisions required for falling off the abdominal wall and valve slippage, need for mesh, problematic loose joints, scoliosis, vascular fragility, etc. - but she simply thinks that if my thumb doesn't fold back on itself, I don't have EDS. Recently I had to have surgery for something not pouch-related, and could not convince the surgeons that I may not heal as expected and I do not scar internally. They just looked at me like I'm a paranoid idiot. I think a confirming test could be helpful to convince them (of course a physician that listens would be more helpful!)

Debbie

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