Reply to "Would you go back to the ileostomy?"

Kushami posted:

My j-pouch is not functioning well at all now (it was good for 15 year) but I am holding out against going to an ileostomy.

I had a lot of skin irritation when I had the temp ileostomies, even with my best efforts and lots of advice and consultations from a stoma-care nurse. Ouch! I was glad to be rid of that sore ring of skin on my abdomen when I went to the j-pouch. I do have sensitive skin, though. (No actual skin disorders, but my skin gets red and sore very easily.)

I also found that my personality didn't suit the regimen you need to manage an ileostomy (bag changing, skin care, etc.). For some reason, I found it psychologically burdensome. However, many people deal with it just fine. If my condition worsens, I will have to overcome this mental block – not looking forward to that!

I feel like there is a “breaking point” that at some point when the only avenue is the ileostomy, it’s easier to accept. Due to where my stricture formed, I had no other choice but to go back to the ileostomy. It was either not be able to eat and wither in the hospital, or regain my life back with the inconvenience of having the bag. A lot of people are very scared of going back to the bag, but I find that having the fear of the bag will also create misery. Living in fear creates a mind set that having a j-pouch is the “only way to live.” I find that this path is also scary because people are willing to sacrifice quality of life for the sake of keeping the j-pouch at all costs.

I hope that your current condition doesn’t worsen and that you feel better. 

-Rina

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