20 years ago I asked the question about continuous long term antibiotics and my GI at the time said “you are the Guinea Pig.” It’s now been around 24-25 years and is kind of a moot issue at this point. But I am on much lower dosages than I ever was before since starting Remicade.
CS, you need to be scoped and you need to be actively treating with a GI. To carry a chronic pouchitis and/or Crohn’s diagnosis and not be scoped in 2 years isn’t a good situation. Your situation has been allowed to deteriorate and you are now in a situation where you have serious health risks. The worse the inflammation gets the harder it will be to get back to good or somewhat normal bowel function. I think you might be a candidate for biologics but that’s for your GI to decide after you get scoped. Don’t be surprised if you get that recommendation at some point. But chronic antibiotic treatment should be attempted first.