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Reply to "Women who had J-pouch surgery in past 5 years "can we talk?""

I had a colectomy in 2015 after getting very sick from UC complications. It's been a journey, I had to have 3 surgeries for my jpouch. When I was in the ileostomy stage I found it very doable. It was so much better than being sick with UC! My husband didn't find my bag especially attractive so I would try to keep it covered in bed. Don't get me wrong; he was very accepting, helpful and patient with me! He's the best! I also started to use the bags that weren't see-through. After the takedown and starting to use my new pouch, there is some flash-back of having UC, but have patience with your body! I learned to use the calmoseptine lotion for butt burn, available at Walmart without a prescription but you have to ask for it at the pharmacy. I was also careful with my diet especially at first to give my gut a chance to heal. It's a bit touch and go. I'm still learning about vitamin supplements and probiotics but I think they are important for my health over all. Also I drink lots of water every single day. The days we have lots going on I find myself getting dehydrated quickly. One other item I don't ever want to live without again is a bidet seat for my toilet. I rarely get butt burn anymore and miss that thing when I'm away too long! There have been bumps along the way with my jpouch but I went through hell with my UC so life is so much better now! I too, know that I could handle having an ileostomy again if I had too but would be really sad if I had to lose my pouch.  I wish you the best and know that you aren't alone in this journey.

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