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Reply to "wish i hadn't"

paul.
sorry to hear your woes. Most on this site will tell you just wait it will get better. Or you may find that you have pouchitis and you need drugs and then it might really get better. But there is also the possibility that you could have functional problems with your pouch. That also needs to be ruled out. I was in your boat, exactly. However, it took me 6 months to get to Cleveland Clinic before they determined that my pouch had serious functional problems that could not be fixed with patience or medicines. So just saying... there are lots of things it could be. Hopefully the Dr. that is doing your scope really knows a lot about jpouches and knows what to look for. Because with me.. my GI that scoped me 6 weeks out, simply diagnosed pouchitis and cuffitis, threw tons of different antibiotics at me and I never improved. But when I finally got myself to CC, they immediately did their own scope and saw I had serious functional problems with my pouch - too long of an efferent limb and the whole darn pouch was way too big.
In summary - I am suggesting that you don't just "wait it out" but you go get a scope from a very experienced jpouch doctor to figure out what is going on so you can get on with your life.
good luck.
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