Mary Beth, oh noes sorry your GI was unaware/unable to direct you to better resources. When I was diagnosed almost 40 years ago, I had to buy a book from the then National Foundation for Ileitis and Colitis (the forerunner to CCFA). Al Gore hadn't yet invented the internet. But that book was very instructive. I am glad to hear you're now so involved. A good friend of mine is on our local education committee doing the same volunteer work you are. here in the SF bay area docs and hospitals are well equipped but in the Central Valley of California much less so and I hear the GI's and their staff are very receptive. I do most of my volunteering via very heavy participation in the Team Challenge program and it is always inspiring to meet new patients and engage them as they progress in their journey.