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Reply to "When you have K-pouch, what do you use to cover the stoma hole when its not in use??/"

Hi, Well, I have a lot of mucous, etc. coming out of me all the time. Will sometimes use Ampatch with an additional all gauze inside, only for very short time periods , as it doesnt hold enough.

Most of the time I use large Waterproof Bandaid also doubled gauze inside, On top of both of these I must use double thick folded paper towels. And still many times a day must change my clothes as they are wet all the way through! It has been quite a bit of money to keep up with all the supplies I go through.

My stoma is small but if it is touched, it bleeds, not sure how one does not cover it, also wouldn’t it be injured just from abrasion?
People are all different though and my issues may be due to having less intestines, I had 2 previous Jpouchs, for me, much easier to deal with, until they had to go. Again, every situation is different.
Big issue is finding medical care when you need it , as almost no one is familiar with the continent ostomy anymore. Just recently had experiences with that again and it’s scary.

Hope all of you are staying safe out there and enjoying life, finding something to enjoy every day even in these times.

Janice

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