Skip to main content

Reply to "What's next??"

I would call Dr. Sonoda's nurse back and ask to speak directly to him. It is not acceptable to have two procedures done when a surgeon is concerned about crohn's and not speak directly to his patient. If you have nothing wrong like crohn's or pouchitis, maybe you have IPS, but that would cause symptoms similar to pouchitis which is does not sound like you have. You may very well also have adhesions which I am not sure what the symptoms for those are.

For the record, I often have gurgling in my jpouch, esp when I need to empty it and sometimes the noise is very low like in the rectal area too. I also have slight pelvic pain when I empty, but that is related to inflammation and it is not a pinching type pain like you are describing. If you do have strictures (esp at the anastomosis), it would concern me that he is not addressing them.

Good luck and please report back your progress.
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×