Reply to "what % of pouchers get chronic pouchitis?"

rustyskylineMember

This question comes up every now and then but you have to consider the group of people who will be coming to this website. Most people who have a j-pouch and live out their lives merrily, won't be coming here.

As for me, I got my j-pouch in 1995 and have had chronic refractory pouchitis pretty much the whole way. When it is at its worse, I take flagyl and cipro and I find the side effects for both of those drugs to be considerable. So, I take them for 15 days each and then go off them until the pouchitis becomes unbearable again; usually about three months in between rounds. I've tried other anti-biotics but they either don't work or don't work well.

8/2/123:50 PM

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