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Reply to "What Gets my goat"

I hear you guys. Family members who just don't get how much we struggle, can say the most insensitive and non-productive things to us!! Sometimes I feel like shouting: "After you've had this disease for 25 years, with years of pain, ER visit, embarrassing accidents, etc. and so forth, THEN give me a call and we can discuss options!!!" It's not easy, but I try and tune out those who think they have all of the answers, esp when they don't TRULY listen to what WE, the 'experts' (at least re our own bodies) have to say!!

Hang in there everyone <3

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