Hello all-
I've been lurking on the forums off an on for a year now. Husband (30) had UC and needed Emergency colon removal 10/12. He is a PHD student at UChicago. He had to take a quarter off and we were trying to plan his surgeries around school
My Husband had his Takedown surgery 12/12. From Day 2 he was in "unusual pain" They discharged him on 12/20 saying it would get better- and it got worse. By the time he went to the ER, he was wailing in pain nightly- out of Vicodin the doctors did not want to refill it. He couldnt sit, stand or lay on his side.
Anyhoo got admitted again 12/30 and the CT was clear. They couldnt do a manual viewing until 1/2 because of the holiday- pain meds were not doing much to ease the pain. They finally looked at his rectum- and found a bunch of Ulcers- and Anal Fissures with Ulcers in them (Surgeon said he had never seen something happen so quickly) They did an emergency Ileosotomy (on the other side because his stoma wound hasnt healed yet) and going to let the ulcers heal- He will be working with the GI team to figure out what's wrong.
Here is my problem. What can I do for him. He's being released today and he's still in pain! He keeps telling me I cannot "fix" this and " I cannot know how he feels"
His mom is here to feed him and take care- which is great because i do not have time off.
What do I do? What do I say?
Original Post