Me... 176 to 129....i was back up to 150 two months ago and since have lost 8 plus pounds and cannot gain anything. It took nearly a year and a half to gain 21 pounds. Ridiculous.
I look like death walking.
I have had the Pouch just short of two years and it's time for it to go before it kills me.
I am not going to deal with it anymore. It's not worth the time and effort and certainly not worth my life.
I will deal with the bag and not have to have a raw butt and everything else. I am over the Pouch.
It's just not worth the trouble.
I am in the 20 percent of who it just does not work.
I am sure others have read my post is the Osteomy forum. Not happy about it but am pushing 60 and need to get this fixed now.
Yes... You should be gaining weight.
I should be too. But something is wrong... With me anyways and the surgeon and I have come to that 20 percent conclusion.
You need to see someone and get an idea why you are losing and not gaining. That is important.
My pouch is healthy. I may have chron's but not willing to take the pill test as it may cause a blockage and will require surgery anyways.
The weight you are losing is extreme. I have gone through the same thing and it needs to be taken seriously.
I have hoped for good news too jeffsmom. But you can only suffer so much before you realize the bag... Appliance... I like that word better.... Is the answer.
I have gone like I said almost two years dealing with this and that's enough. It works or it doesn't. Two years is enough time to tell that.
I have been through so many bad days in the two year period that while going through the bad days thinking how much easier it would be for it to be going into a bag. No pain. No cramping. None of that BB. Terrible.
Like I said also. I'm not happy about it. I don't want to wear an appliance. Or go through surgery again. I went through a lot of pain to get my pouch. But I have tried it all to no avail. If I continue on the way I am going I won't be around to see my 65th birthday. With an Osteomy I am sure I will.
I wish you all luck in the future.
It's hard to put on the weight. I know.
You may find a simple answer to your weight loss problem. Protein will put it on. It didn't work for me. But it does for some.
With an appliance I have confidence that I will put my weight back on and be much healthier than I am now.
Long read... I apologize.
But I am going where I was trying to avoid.
But I have to accept it and move on and posting... And talking about it helps.
Thank you for listening and reading.
I reread my post. Wow. I was gonna delete it but am gonna let it fly. Lotta anger. But I am angry that I have to give mine up. It's what I've been dealt and I have to live with it. If I can go through this I know I can get used to an appliance. May take while but it will happen.
Sorry to hijack your post. You need to see someone bout the weight loss. Period.
Richard.