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I have MYH-associated polyposis, MAP.  It is similar to FAP.  The doctor could no longer keep up with the number of polyps I have so I had a total colectomy on 6/15 and my takedown on 10/15.  I can't believe that it is almost two years since my surgery.  I went for two consultations with surgeons in and near Philadelphia.  The surgeon at Penn had told me that she didn't even want to leave any of my rectum.  She wanted to take out everything and sew up my anus and I would have an ostomy for the rest of my life.  My second consultation gave me some hope for the future.  I had my surgeries at Lankenau and they did the colectomy and formed the J-pouch and then I had the takedown 3 months later.  At first I felt the way you did.  I had lost 30 lbs and   I could hardly eat anything except rice, bread, chicken, potatoes, peanut butter, etc.  Now  I still have a few foods that bother me but I pretty much eat what ever I want and I don't even think about it anymore.  Now I am gaining weight (which is stressing me out) because I guess my body has healed and my pouch is starting to get used to its new job and is absorbing more nutrients that it had in the beginning.  This post is almost a year since you original post.  I would love to hear how you are doing. 

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