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Reply to "Veteran Pouch, now Crohn's"

I recently had a scope done of my pouch.  I have never really felt great since my J-pouch procedure in 2004.  I would have better days then others, but never felt like I could not know where the nearest bathroom was....always felt some discomfort, gassy and tired. I had really bad days and was diagnosed with pouchitis, put on antibiotics and felt better until I stopped...then went back to baseline.  My symptoms started worsening the last few months and so I scheduled a scope.  I was told after the procedure that there was inflammation in the pouch and ileum along with some lesions that were consistent with Crohn's. There were two strictures, one on either end of the pouch as well..... when the test results came back the diagnosis was Ileitis.  There was inflammation and ulcerations.  My surgeon referred me to a GI doctor.  I am making an appointment... but from everything I have read, it sounds like I am on the road to  a Crohn's diagnosis.... and I can't even wrap my head around that.

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