Reply to "Upset - maybe misdiagnosed and biologics concerns"

I agree in the take one step at a time approach. However, you need to be aggressive in treating chronic inflammation, and not dawdle if you are stagnating or regressing with any one treatment.  If the antibiotics are not achieving success (and the proof will come in your scopes), you should go to the next step sooner rather than later.

I also agree with Jan on not getting caught up in diagnostic slowdowns.  The diagnosis, as between pouchitis and Crohn's, does not matter for reasons that have already been stated.  It's chronic inflammation, whatever you have is whatever you have, and it needs to be treated regardless of what it is called.

Blueflame, as I already mentioned, Remicade is a treatment for chronic pouchitis whether it's diagnosed as Chrohn's or not.  It is a proven treatment of pouch inflammation.  It eviscerated my pouch inflammation but not my neoterminal ileum inflammation. You gotta forget the words "pouchitis" and "Chrohn's" and instead use the words "chronic inflammation."  What you call it beyond that simply does not matter.

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