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Reply to "Upset - maybe misdiagnosed and biologics concerns"

Since being on this sight, I have found it most bothersome to read that diagnosis doesn’t matter. I agree when it comes to biologic treatment, Colitis and Crohns can have very similar, if not the same  biologic treatment. But there are differences in  treatment of small bowel and large bowel.  My diagnosis has never been IBS  or indeterminate IBS, it has always been UC. I certainly had symptoms of Crohns, but my UC treatment remained the same.  And I did have the Prometheus test and it wasn’t a BS test, quite important . It provided substantiation I had UC. Additionally, it supported continuing treatment options - creating a Kpouch, which is not advised for a Crohns diagnosis. My entire medical treatment has been based on my UC diagnosis.  We are all entitled to our opinions and beliefs, and may have the best doctors treating us telling us many differing opinions.  But I believe  with all my doctors and treatment my diagnosis IS important. Symptoms fluctuate, treatment fluctuates, but original diagnosis has never fluctuated for me. It comes across very callous that one should not put any weight into their diagnosis let alone minimizing when one opts for a test that could corroborate diagnosis. Nothing is typically concrete in our world of GI disorders, but I believe the original determination matters. 

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