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Reply to "Upset - maybe misdiagnosed and biologics concerns"

As I mentioned previously what the actual diagnosis is is kind of irrelevant. It's chronic inflammation and regardless of what it's called it has to be treated. More variants of IBD exist than they know but they all have to be treated and the treatments are the same.  I went from a UC to a tentative Crohn's diagnosis 15 years after getting a J Pouch which has never been confirmed despite multiple diagnostic tests that were a waste of time and money. The treatments for bowl inflammation of the pouch and ileum are all the same. So as Scott already said you have to explore what other treatment options exist and if the answer is none, your choices will be to use biologics or lose the pouch. I have taken Remicade for 2 years and it works very well on J Pouch inflammation but not as well on inflammation above the Pouch. That's been my experience anyway. Entyvio and other biologics exist as well, and can be supplemented with rotating antibiotics as in my case. 

Last edited by CTBarrister
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